Data & Privacy
- Data Act
- Data Governance Act
- ePrivacy Directive
- GDPR
AI & Trust
- Artificial Intelligence Act
Cybersecurity
- Cybersecurity Act
- DORA
- NIS2
Digital Services & Media
- Digital Markets Act
- Digital Services Act
- European Media Freedom Act
Data Governance Act
- Recitals
CHAPTER I
General provisionsArticles 1 — 2
CHAPTER II
Re-use of certain categories of protected data held by public sector bodiesArticles 3 — 9
CHAPTER III
Requirements applicable to data intermediation servicesArticles 10 — 15
CHAPTER IV
Data altruismArticles 16 — 25
CHAPTER V
Competent authorities and procedural provisionsArticles 26 — 28
CHAPTER VI
European Data Innovation BoardArticles 29 — 30
CHAPTER VII
International access and transferArticles 31 — 31
CHAPTER VIII
Delegation and committee procedureArticles 32 — 33
CHAPTER IX
Final and transitional provisionsArticles 34 — 38
DGA Article 20. Transparency requirements
- 1.A recognised data altruism organisation shall keep full and accurate records concerning:
- (a)all natural or legal persons that were given the possibility to process data held by that recognised data altruism organisation, and their contact details;
- (b)the date or duration of the processing of personal data or use of non-personal data;
- (c)the purpose of the processing as declared by the natural or legal person that was given the possibility of processing;
- (d)the fees paid by natural or legal persons processing the data, if any.
- 2.A recognised data altruism organisation shall draw up and transmit to the relevant competent authority for the registration of data altruism organisations an annual activity report which shall contain at least the following:
- (a)information on the activities of the recognised data altruism organisation;
- (b)a description of the way in which the objectives of general interest for which data was collected have been promoted during the given financial year;
- (c)a list of all natural and legal persons that were allowed to process data it holds, including a summary description of the objectives of general interest pursued by such data processing and the description of the technical means used for it, including a description of the techniques used to preserve privacy and data protection;
- (d)a summary of the results of the data processing allowed by the recognised data altruism organisation, where applicable;
- (e)information on sources of revenue of the recognised data altruism organisation, in particular all revenue from allowing access to the data, and on expenditure.
Relevant Recitals for this Article
The registration of recognised data altruism organisations and use of the label ‘data altruism organisation recognised in the Union’ is expected to lead to the establishment of data repositories. Registration in a Member State would be valid across the Union and is expected to facilitate cross-border data use within the Union and the emergence of data pools covering several Member States. Data holders could give permission to the processing of their non-personal data for a range of purposes not established at the moment of giving the permission. The compliance of such recognised data altruism organisations with a set of requirements as laid down in this Regulation should bring trust that the data made available for altruistic purposes is serving an objective of general interest. Such trust should result in particular from having a place of establishment or a legal representative within the Union, as well as from the requirement that recognised data altruism organisations are not-for-profit organisations, from transparency requirements and from specific safeguards in place to protect rights and interests of data subjects and undertakings.